Tag: MS

Cheers to 40!

Published on by KBLeave a comment

Today I am 40!

I still can’t believe this!

Wow! 40!

10yrs closer to 50! LOL!

Anyhoo. Haven’t posted in a while. Been going through A LOT these last 6mnths.

I believe I wrote in a previous Blog my husband showed symptoms of MS. We finally got a diagnosis. He has been receiving Ocrevus infusions as treatment and going to Physical Therapy.

It has defiantly been hard. My life has turned upset down. Everything has been on ME these past 6mmnths!

Working, doing overtime when I can, shopping, cooking, cleaning, getting him to his MANY Dr appointments, and now Physical Therapy appointments and going through the whole process of being approved for Social Security Disability.

Last year, I was planning a Girls Trip, to do something amazing for all of us turning 40 and now, today … a coworker took me out to Brunch. I actually wasn’t even going to go. I have been trying hard to not be depressed. But, I am scared. I feel like I have been in survival mode just to make sure I can afford everything on my income alone.

I literally stopped doing everything just to be able to afford paying for rent and food. We don’t go out, no going out to eat, I cook EVERYTHING, I canceled EVERYTHING we don’t need, stopped shopping and found old clothes to wear. I am even looking for a Part Time job.

I am trying so hard not to lose it.

Because my husband didn’t ask for this.

I am trying to give him all the support I can give while I am praying for my own sanity.

Life Update

Published on by KBLeave a comment

I have been so bad with this Blog, but have so much to talk about…

The biggest update…my husband started to have numbness in hands, legs and feet, tingling, back pain then started having trouble walking.

In December of last year, he started falling…a lot.

He works as a Maintenance Technician and due to his job being so demanding, he stopped working until we found out what was going on.

4 months later, 4 Specialists, 5 MRI’s and after a ton of blood work, we are finally getting to a diagnosis…which is unfortunately, Mutiple Sclerosis. He hasn’t been OFICIALLY diagnosed, but the MS Specialist gave us pamphlets to look over for treatment. She ordered another set of bloodwork to rule out anything other diseases.

Unfortunately, my husband did not add Short Term Disability on his insurance when he was hired so he has had ZERO income, and everything is now on me. We did not know he was going to be out of work for this amount of time, so we just applied for Social Security/Disability which could take a year to even approve!

I have just been so sad. I am sad for my husband to see him so sick and I am scared that eventually out bills are going to catch up to us.

My so-called friends haven’t reached out to see how he is doing and that really makes me annoyed and angry!

We have been married for 5yrs and I just didn’t expect to go through this “sickness” this early on in our marriage, but just goes to show us how quickly LIFE can turn around on you. He is only 47 and, on a walker, right now.

We go back to the Dr. next week and I am praying we get the diagnosis, discuss treatment and schedule when he can start so he can start feeling better.

A 47yr old man does not deserve to live his life on a walker.

The good thing about MS is that it’s not a death sentence and treatment has come a long way. People can still live a good life and I am determined to have that for my husband. 🙂